Welcome back Podcast Family!
This week we are sharing part three where some of those who were able to attend the Lewy Buddy Meet-Up in Caney Kansas on September 14, 2024 share how they felt meeting people they have only seen on zoom. For some, it was the first time they meet another person with Lewy Body Dementia in person. I know you will hear the Lewy Love shared by those who attended in Kansas. This needs to be in three parts because we recorded our first zoom meeting after the event and we wanted to give each person the opportunity to share how the meet-up made them feel- so very powerful!

Thank you all for your continued support and patience with us as we try really hard to get a new podcast done- hoping we get one a week but as you all know, Lewy and life sometimes get in the way. We know you all understand and support us anyway and for that we thank you!!! xoxo

Remember...We are doing this for all of us and we thank you from the bottom of our hearts.
Should you wish to bless us with your support for the podcast, you can use links below.

Copy and paste link, if needed
https://patreon.com/lewybodyrollercoasterpodcast
the GoFundMe page at
https://gofund.me/c416ecb65

Support the show

Welcome back Podcast Family!
This week we are sharing part one of three where some of those who were able to attend the Lewy Buddy Meet-Up in Caney Kansas on September 14, 2024 share how they felt meeting people they have only seen on zoom. For some, it was the first time they meet another person with Lewy Body Dementia in person. I know you will hear the Lewy Love shared by those who attended in Kansas. This needs to be in three parts because we recorded our first zoom meeting after the event and we wanted to give each person the opportunity to share how the meet-up made them feel.

Thank you all for your continued support and patience with us as we try really hard to get a new podcast done- hoping we get one a week but as you all know, Lewy and life sometimes get in the way. We know you all understand and support us anyway and for that we thank you!!! xoxo

Remember...We are doing this for all of us and we thank you from the bottom of our hearts.
Should you wish to bless us with your support for the podcast, you can use links below.

Copy and paste link, if needed
https://patreon.com/lewybodyrollercoasterpodcast
the GoFundMe page at
https://gofund.me/c416ecb65

Support the show

Welcome back!
Curry shares how his summer went with his LBD causing a few hospital stays. He also shares some important information about Hospice and Narcan Nasal Spray.
Four years ago we uploaded and published our first episode. It is just crazy that this will be our 138the episode and we are over 60K downloads so thank you all for your continued support and patience. Lewy sure has been a bugger to Curry this summer.

Thank you all for your continued support and patience with us as we try really hard to get a new podcast done- hoping we get one a week but as you all know, Lewy and life sometimes get in the way. We know you all understand and support us anyway and for that we thank you!!! xoxo

Remember...We are doing this for all of us and we thank you from the bottom of our hearts.
Should you wish to bless us with your support for the podcast, you can use links below.

Copy and paste link, if needed
https://patreon.com/lewybodyrollercoasterpodcast
the GoFundMe page at
https://gofund.me/c416ecb6

Thank you for listening.
Don't forget to join our Lewy Body Roller Coaster Podcast Facebook page.

Support the show

Welcome back to part 2 with our friend Ray .

In this episode, we tackle the complexities of managing Lewy body dementia, from handling tremors and balance issues to dealing with unique symptoms like a persistent runny nose. Ray shares how activities like Rocksteady Boxing have been transformative for him. We also explore various remedies for those pesky muscle cramps, including some unconventional and amusing methods. You'll leave with practical advice, heartfelt stories, and maybe even a new trick or two to try out. Join us for an episode filled with wisdom, community spirit, and a touch of humor.

Thank you all for your continued support and patience with us as we try really hard to get a new podcast done- hoping we get one a week but as you all know, Lewy and life sometimes get in the way. We know you all understand and support us anyway and for that we thank you!!! xoxo

Remember...We are doing this for all of us and we thank you from the bottom of our hearts.
Should you wish to bless us with your support for the podcast, you can use links below.

Copy and paste link, if needed
https://patreon.com/lewybodyrollercoasterpodcast
the GoFundMe page at
https://gofund.me/c416ecb6

Thank you for listening.
Don't forget to join our Lewy Body Roller Coaster Podcast Facebook page.

Support the show

Welcome Ray this week.
In this episode, we tackle the complexities of managing Lewy body dementia, from handling tremors and balance issues to dealing with unique symptoms like a persistent runny nose. Ray shares how activities like Rocksteady Boxing have been transformative for him. We also explore various remedies for those pesky muscle cramps, including some unconventional and amusing methods. You'll leave with practical advice, heartfelt stories, and maybe even a new trick or two to try out. Join us for an episode filled with wisdom, community spirit, and a touch of humor. Thank you all for your continued support and patience with us as we try really hard to get a new podcast done- hoping we get one a week but as you all know, Lewy and life sometimes get in the way. We know you all understand and support us anyway and for that we thank you!!! xoxo

Remember...We are doing this for all of us and we thank you from the bottom of our hearts.
Should you wish to bless us with your support for the podcast, you can use links below.

Copy and paste link, if needed
https://patreon.com/lewybodyrollercoasterpodcast
the GoFundMe page at
https://gofund.me/c416ecb6

Thank you for listening.
Don't forget to join our Lewy Body Roller Coaster Podcast Facebook page.

Support the show

Have you ever wondered about the hidden cognitive risks tied to everyday medical procedures? Listen to our latest episode featuring Jackie Babcock-Brown, who shares her powerful journey with Lewy Body Dementia. Diagnosed at just 55, Jackie recounts how a routine colonoscopy unexpectedly led to severe cognitive complications, unraveling into a sudden and dramatic onset of Lewy Body symptoms. We emphasize the critical importance of being informed about the potential cognitive impacts of anesthesia, especially for those with pre-existing neurological conditions.
Thank you all for your continued support and patience with us as we try really hard to get a new podcast done- hoping we get one a week but as you all know, Lewy and life sometimes get in the way. We know you all understand and support us anyway and for that we thank you!!! xoxo

Remember...We are doing this for all of us and we thank you from the bottom of our hearts.
Should you wish to bless us with your support for the podcast, you can use links below.

Copy and paste link, if needed
https://patreon.com/lewybodyrollercoasterpodcast
the GoFundMe page at
https://gofund.me/c416ecb6

Thank you for listening.
Don't forget to join our Lewy Body Roller Coaster Podcast Facebook page.

Support the show

This week, Curry and I share about REM Sleep Disorder and the importance of having your loved on video tape your sleep patterns.

This episode also digs into the frustrating journey of finding effective sleep aids, featuring personal experiences with melatonin, Seroquel, Clonazepam, and CPAP machines. We discuss the challenges of distinguishing between dream states and reality, and the impact of sleep disturbances on daily life and relationships. Caregivers will find invaluable tips on tracking symptoms with checklists and journals, and the importance of providing clear evidence to doctors through videotaping behaviors. Lastly, we underscore the power of community, especially through Zoom support groups, as a vital resource for shared experiences and mutual understanding in coping with Lewy Body Dementia.
Thank you all for your continued support and patience with us as we try really hard to get a new podcast done- hoping we get one a week but as you all know, Lewy and life sometimes get in the way. We know you all understand and support us anyway and for that we thank you!!! xoxo

Remember...We are doing this for all of us and we thank you from the bottom of our hearts.
Should you wish to bless us with your support for the podcast, you can use links below.

Copy and paste link, if needed
https://patreon.com/lewybodyrollercoasterpodcast
the GoFundMe page at
https://gofund.me/c416ecb6

Thank you for listening.
Don't forget to join our Lewy Body Roller Coaster Podcast Facebook page.

Support the show