• Living with XLH: Parenting a child with a rare disease

  • Nov 23 2024
  • Length: 38 mins
  • Podcast

Living with XLH: Parenting a child with a rare disease

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  • Summary

  • This week, XLH Australia President Sandy Bevc and XLH Australia Vice President Naomi Ford speak with their mothers about their experiences parenting a child with a rare condition.

    Topics discussed:

    1. The journey to diagnosis
    2. Parenting a child with a rare disease
    3. Navigating healthcare and advocacy

    Links mentioned in this episode: www.xlhaustralia.com

    This podcast is hosted by ZenCast.fm
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